I read your post, your profile but still know very little about you which limits me a tad bit in what I am going to say. What I will share is a personal testimony. Somewhere here on SI there is a lengthy version of what I will share briefly here.
In 1996 we lost our only daughter to a brain tumor, glioblastoma. She was married, had two children and she also had four brothers. She technically battled this cancer for 18 months although she was not aware of its existence in its early stages.
In the meantime she got pregnant and the baby was taken by C-section at 30 weeks gestation due to the fact that she was dying. This happened in March but she lived until the following January when she died.
At this time the doctor told me that they need to surgically remove the baby because she was dying. I cried hard for two days. I mean hard. Regina and I were close and she lived 730 miles from us.
At the end of the second day I knew I could not survive long in this emotional state, so after putting my granddaughter to bed I decided to have this thing out with God. I sat on the bed and I prayed, read the Scriptures and was quiet before God. I do not recall how long this time was, but at the end a few truths emerged which became part and parcel of what I am today: make life happen each and every day; do not worry about tomorrow and whatever happens then God will provide us with whatever is needed to cope; and I may die before Regina does, who knows? The docs say she will not live long but then she may outlive me! so, then do not worry. And if or when Gina dies, God will be with me to deal with it when it happens.
After this time of meeting with the LORD, I was able to embrace life each day knowing full well she may die, but I no longer wept. When she did die 10 months later, I never cried as hard as I did before the time I wrestled with God on this issue.
When Gina died the Holy Spirit was there to give me comfort, the like I never imagined. It was glorious. It is my personal conviction that when you submit to God's will in this matter and live in the expectation that he will provide you with the strength to deal with it when it happens you will be the recipient of some awesome comfort. I am also of the conviction that the comfort will take on different forms. The manner in which I was comforted will not be the same for others, hence I will not share those details here for your benefit because you may look to experience the same and there is no cookie-cutter comfort. You must look to a person, not a method - huge difference.
Grief will follow you for some time: this is normal and to be expected - do not fight it. Allow it to happen. If you feel like crying, cry and do not allow tears to embarrass you. One time I was at a Wal-Mart and was standing in from of a clothes item Gina liked and suddenly it hit me - hard, and I battled tears. How I wished for a corner to go to hide...Yes, tears can come at the most unexpected times.
I also made sure I kept my personal time with the LORD EVERYDAY. My spiritual, emotion well-being depended on it, no, my survival. In the meantime, God used a lot of things to bring me comfort...did you notice I said things? Yes, things. And then there were social interactions.
One of the worst things that crept up on me was anger. I was a perfect grouch - it did not take much to get me cranked up until one day the LORD showed me what was happening. Once I recognized it, I could deal with it.
Pamy, I have seen three people die: Regina, my mother-in-law and Dad. The situations for all three were different but they were ready to meet the LORD. This alone brings with it great comfort because the LORD is delighted when His children finish their race and they make it home. If the person would not be ready to meet the LORD and they died, I would guess this grief to be so terrible that one would have to have a supper abundance of grace from the LORD to cope. Knowing God I am sure He will supply that to the person who casts all this care upon Him.
This is my testimony. I simply echo what other posters have said and am here to tell you it works. If you are looking to a method to deal with your grief, nothing mentioned here will work.
In the time since Gina died I have talked some with other parents of terminally ill children but no one wants to submit this child to God's will. They are angry and fight God! I think - how dumb can you get! Really! God gave them a gift - now use it!!! Unless you submit to God's will in these matters of life and death you will end up angry at God and bitterness will invade your soul and you will have troubles for which God can do nothing until you repent of your stubbornness.
God bless and I hope this helps. Go ahead and cry, that is OK...I still can cry but have made peace with this emotion..
God bless,
ginnyrose